It's Monday which means a new doctor, and like us, she is wondering why he isn't on a bottle (she had put him on one bottle a day when she was his doctor last weekend, Jan 10-11). His main nurse, Jacky, was wondering the same thing. So the exciting news is that our team this week sounds a little more aggressive than last week and will push to see what our little Edmund can do. He needs to be able to start working on and getting used to having to suck & swallow to get food. The speech therapist is here now and she, Jacky, and the doc have decided to give him a bottle of just 5ml to see what he does...
His fentanyl will continue to be weaned .5 every other day. It's hard to be patient, but when it gets this low, it does have to be that slow. Even going that slow, there will be a little withdrawal. So, Lord willing, his withdrawal won't be too bad and he'll be off the fentanyl on Saturday.
Unfortunately, Jacky says we'll probably be here for at least 2 more weeks before he's feeding at the point where he's ready to go home:( That's hard, but I suppose it just gives us that much more time to lean on God's strength and be patient for His timing:)
Dennis, Heidi & Edmund